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This is your About Page. It's a great opportunity to give a full background on who you are, what you do, and what your website has to offer. Double click on the text box to start editing your content and make sure to add all the relevant details you want to share with site visitors.

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This is your About page. This space is a great opportunity to give a full background on who you are, what you do and what your site has to offer. Your users are genuinely interested in learning more about you, so don’t be afraid to share personal anecdotes to create a more friendly quality. Every website has a story, and your visitors want to hear yours. This space is a great opportunity to provide any personal details you want to share with your followers. Include interesting anecdotes and facts to keep readers engaged. Double click on the text box to start editing your content and make sure to add all the relevant details you want site visitors to know. If you’re a business, talk about how you started and share your professional journey. Explain your core values, your commitment to customers and how you stand out from the crowd. Add a photo, gallery or video for even more engagement.

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You can help find a cure for this rare disease today

Hereditary Spastic Paraplegia (HSP SPG4)  disease is very rare and so there is less incentive for companies to allocate money towards researching the disease and its cure. There is very little funding from the government.  SPG4 is progressive and currently there is no cure to reverse or stop the progression. It is extremely important for affected individuals and their families to help fund the research necessary to help find a cure. With the generosity of selfless donors, we can help Maurya and other deserving children, adults, and their families that have been afflicted by this rare disease.

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