Poker Night, February 1, 2025
$2950 Raised
We hosted the first-ever Poker Night at Still Water Community. The event featured a variety of food, beverages, and foundation swag. Sean Schaefer from the community was instrumental in organizing the poker tournament. Vamsi gave a presentation on SPG4, the foundation's goals, current research, and the importance of awareness and fundraising. Maurya officially started the Poker Night, and attendees enthusiastically participated in the fun and meaningful event, which included some serious poker playing. The top three players won cash prizes, and exciting raffle prizes added to the fun. The event was a resounding success, raising $2950 for Project Gene Therapy research. Thank you all for participating and making this event a grand success. Thank you to all our sponsors for Raffle prizes. We hope you continue to support the foundation to help every kid and adult afflicted with this rare disease SPG4.
Fundraisers
5K Run/Walk/Roll on August 24th
-EDIT_edited_edited_ed.png)
$2850 Raised
We hosted the first ever 5K Run/Walk Roll Event and supporting the cause! It was a successful event bringing the community together and apprising them with the SPG4, funding update and research progress. Hosting games for kids was lot of fun and finally Raffling brought much cheers. We are thankful to our supporters and sponsors.
Yash's (Maurya's Mom) Mount Everest Base Camp Campaign- $2324 raised
Enroute Mount Everest Base Camp
.jpeg)
At the Mount Everest Base Camp- ~18,000 feet
A Mountain symbolizes Strength and has remained an iconic symbol for Resilience. For my milestone birthday this year, I decided to set a milestone for myself and spread hope/awareness for an Ultra Rare Disease warriors of SPG4/Hereditary Spastic Paraplegia (HSP). As part of our foundation's commitment to reach greater heights to help the SPG4/HSP community, I have chosen to embark on the journey of a lifetime to the MOUNT EVEREST BASE CAMP with my friends. I decided to raise the flag of Maurya Koduri Foundation high to represent our battle with my son’s Ultra Rare Disease Hereditary Spastic Paraplegia subtype SPG4 de novo at Mount Everest Base Camp to symbolize every ascent towards the Base camp is not only conquering the mountain but also conquering the challenges faced by my 11 year old son/ my family and the entire HSP community. I'm stepping out of my comfort zone to challenge myself both physically and mentally, all for a cause that's very close to my heart. As part of my Trailblazing journey to raise awareness and spread hope for a CURE for this RARE DISEASE, I am raising funds knowing that each donation received is a testament to the support of the entire SPG4 HSP community. As I make my way to Everest Base Camp, I invite you to be a part of this transformative journey. Your SUPPORT fuels not just my steps but also creates an opportunity for BETTERMENT of HUMANITY.
Scaling Peaks, Spreading Hope is my SLOGAN for this milestone TREK!
​
For my Trek in May 2024, I am getting ready to battle below freezing temperatures, low oxygen at high altitude, and very long 9 days of trekking covering ~130 kilometers/ 80 miles and climbing a height of ~5545 meters/ 18,192 ft – all in the hope of raising awareness for this Ultra rare disease and an incredible amount of money directed to support the brilliant researchers and amazing research that is happening as I write this. If you’d like to invest in this labor of love, please do so by clicking the DONATE button on the top right. Every dollar counts and 100% of your donation goes to research. Please check for Employer Gift match as you may have the potential to double your donation. For larger donations, consider a check to avoid processing fees. Please spread the message.
​
Thank you so much for reading and for your support!
​
Yashodha Sunkara
A RARE MOM
Alone we can do so little; Together we can do so much.
Panera Bread Fundraiser- February 29th, 2024- Rare Disease Day
$799.56 raised
.png)
As part of the National Rare Disease day (Feb 29th), Maurya Koduri Foundation raised awareness for an Ultra Rare Disease HSP SPG4 by joining hands with Panera Bread and raised some dough at three locations- Naperville, Aurora and Plainfield, IL.
Men's Night- December 1st, 2023
$3012 raised
Men's Night on December 1st, 2023 @ Golconda Restaurant, Naperville, a Fun Fundraising event for Maurya Koduri Foundation was a huge success. 30 days of hard work, marketing, planning, organizing comes to fruition. Sumptuous food, drinks, games, live performances, raffle prizes and a Big Surprise, all garnered much appreciation. Thank you to all the Men who attended the event and for your support. Maurya Koduri Foundation was able to raise $3012 from Men's Night Event.