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5KCharityforRarity

Sat, Aug 24

|

Wabounsie Lake Park

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5KCharityforRarity
5KCharityforRarity

Time & Location

Aug 24, 2024, 4:00 PM – 6:00 PM CDT

Wabounsie Lake Park, 998 Kautz Rd, Aurora, IL 60504, USA

Guests

About the event

5K for a Cause. Lace up your sneakers and join us to sweat for good. Run, Walk or Roll your Wheels to come forward this summer to show your support. Charity for Rarity is a 5K run to create awareness and raise funds for those battling with the ULTRA RARE disease for HSP SGPG4. Every step you take is a step towards fuelling awareness and creating funds. Maurya Koduri Foundation is dedicated to raise awarenss and funds for those battling with HSP SPG4. Register now and be a part of our journey towards hope and healing. 

What's Included?

- Maurya Koduri Foundation T-Shirt

- Wrist Band

- Water Bottle

- Games

Share this event

You can help find a cure for this rare disease today

Hereditary Spastic Paraplegia (HSP SPG4)  disease is very rare and so there is less incentive for companies to allocate money towards researching the disease and its cure. There is very little funding from the government.  SPG4 is progressive and currently there is no cure to reverse or stop the progression. It is extremely important for affected individuals and their families to help fund the research necessary to help find a cure. With the generosity of selfless donors, we can help Maurya and other deserving children, adults, and their families that have been afflicted by this rare disease.

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